Parents fundraise $1 million for gene therapy to treat daughter’s disorder
Sasha Lipworth, 9, suffers from a rare genetic disorder that has robbed her of essential skills. Her parents, David and Nadine, are working with international scientists to develop a gene therapy, aiming for Sasha to receive her first treatment by her 10th birthday in March 2024. They face a $1 million challenge to secure necessary testing funding.
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Published 04 Jul 2026, 19:00 UTC · Updated 04 Jul 2026, 19:10 UTC
Summary by OZbrief Editorial. Original report: SMH. Editorial policy · Corrections
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